May 31, 2013

Update from London & Happy Friday!!!

May 31, 2013/ Chasing Hazel

We had a visit to the cardiologist and pediatrician this week. It's been a busy one. 15 months already!!!

The cardiologist in London is extremely happy with Hazel. He is always very excited to see how big she is getting, how much she's changed and just how healthy and happy she looks. Hazel weights 23.5 lbs and is 31 inches long. She is getting so big!!! She spent the visit smiling, waving and blowing kisses to the whole staff, so I'm pretty sure by their laughter and smiles they were quite smitten as well.

We have been blessed with the doctors that Hazel has advocating and watching over her. Our cardiologist (and the staff) genuinely cares for Hazel and we can tell by the way he looks at her. That really is all a parent can ask for. The doctor to CARE about their child. It seems as though he treats her like she's his own, it's like he's protective over her. LOVE!!!

The last thing he said to us was that seeing Hazel made his day. Until next time...

Gratitude & Love

Chasing Hazel

Welcome

Hi!!! (I wish I could use the 'wave' emoticon right here) So very kind of you to stop by and meet our little family. Prepare yourself to read about the daily shenanigans of living and loving life with Down syndrome. Oh - I should warn you - sometimes there's this neurotic women who takes control of this space and rants about the 2 tiny humans (ahem…terrorists) that are in current reign of the household. Join the chase!

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First day of summer views 👌🏼 Happy Friday everyone! Anyone have any plans?

First day of school 🙌🏼🙌🏼 Swipe • Last day of sch.... ahhhh forget it 🎧📱 #hazelandnola #weout✌🏼

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Literally the most present, involved, caring, funny, silly, comforting, supportive, patient, loving, tender, empathetic father there ever was. The girls lean on him for everything. There are certain things he can do for them that no one else can, not even me. The relationship they have so is incredibly strong. I know they are going to be more evolved human beings because of, and with his influence. He reminds us all that there is good in the world. He sees it. He lives it. He shares it. Happy Father’s Day @seegs34

They say, “there’s a season for everything” that “you can’t always get what you want” 🤷🏼&zwj;♀️ But I say, forget that (and if you know me, replace that f word for another one), and buy a truck. Then you can alwa

They say, “there’s a season for everything” that “you can’t always get what you want” 🤷🏼‍♀️ But I say, forget that (and if you know me, replace that f word for another one), and buy a truck. Then you can always get what you want and it’s always truck season 💪🏼🤘🏼 For reals though... I’m so grateful for this life, the sacrifices we’ve made, and the work ethic we have in order to have nice things. Because actually in fact you just can’t always have what you want, you have to work your ass off first. My new wheels guys. LOOK AT MY NEW WHEELS!!! 😱

It’s a crazy season we are in right now. Not seeing these 5 together has been one of the toughest things. Yesterday was a good day ✨✨✨ #seguincousins

Crazy fun All Together Fitness comp today. And by fun I mean fun up until the 400m bear crawl (pictured here). This was the last of 4 events today. I literally almost died. At one point I asked for a panini cause I thought it would make me feel better. I also asked for someone to dangle Netflix in front of me so I could just be distracted. The only reason I didn’t quit was because my kids were watching. We all started at the line together and they all met me at the line when I fell over it 😂 My very first fitness comp to date. Gotta say, I’m still standing 😂😂 Loved hanging on zoom with so many today and being a part of such a cool thing even though we are all still apart. Missed the All Level Crew today so much but so thankful for all the work they put into this event. Get after it folks! @alllevelfit #seegstimesfour

14 years ago today I literally almost jumped into his arms by the time I met him at the alter. Been together for 22 years total. It’s incredible how much we have shared together over the 22 years. After our wedding 14 years ago, the number one comment about that day was how big my smile was the entire day. So many people said it. My face hurt from smiling. So much time has passed. My face has hurt from smiling many days since then. It’s also hurt from crying. And fighting. And being exhausted. Life has thrown us so much, so many gifts (even the ones that didn’t feel like gifts at the time), and we are still standing. Sometimes we just have to make sure the other is close so we can lean in.

✌🏽✌🏾✌🏿My heart has been heavy. My head has been spinning. I have been reading and listening. And reading and listening. I can’t even begin to think I have even scraped the surface of the nuances of complex systemic issues that have been so ingrained in us we don’t even realize it. Racism - still alive and well in 2020 and thriving on fear. I will participate in BlackOutTuesday for BlackLivesMatter. I am of the opinion that I shouldn’t have to say “Black” lives matter because it’s redundant. Of course they do. • Here are some accounts I’ve been following or recently started following. Give them a follow. Head over and start reading. I am realizing there is a great deal that we do not know, and we can’t know what we don’t know. • @theconsciouskid @rachel.cargle @austinchanning

Hazel has been doing great! She never complains she’s in any pain. She wants to play and dance. She’s kind of a grouchy Gus on her best day so I think she’s a little more grouchy than normal 🤷🏼‍♀️😂 Her and Nola are always laughing about something. So far so good! #hazelandnola

She’s home!! 👏🏼 She super super cranky and tired, poor little thing. Thank you so so soooooo much to all of you who took the time to comment, like, text, call.... it really means so much to us to know how much this little lady is loved. I was totally overwhelmed with emotion reading all your kind words here and on Facebook 👌🏼😭❤️

This little nugget is having some work done today to fix her obstructive sleep apnea. The hospital is 2 hours from us. Only one parent is allowed to be with her (thanks Covid). Matt is the parent she prefers so he’s there with her. I’m just trying to keep it together. I may or may not have cooked all afternoon yesterday to ensure they have all the meals they need. He probably brought a HUGE cooler full of food 🤷🏼‍♀️ Being so far from them is super super hard but I get it. Last report was that Hazel was in good spirits, watching Frozen on her iPad as they wheeled her in. Usually Matt goes in with her until she fast asleep but again thanks to Covid, he wasn’t able to today 😩 We appreciate all your thoughts, prayers, and positive vibes. She’s a strong girl, I just wish she didn’t have to keep proving it 😭 #hazelismyhero

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