NDSAW #4 - Brothers

Will, Hamilton, Cadman all live together in the same house. They are brothers!!!! This mama no doubt has her hands full, of cuteness!!!! I have been following this lovely family since they adopted their two youngest sons. Then I came to find out they had an older son, Will, with Down syndrome too. Love it!!!!

I happened across this post on IG during DSAM and thought I would share. This is straight from Amber's IG page @akdavis333. Head over and check this sweet family out, you won't want to miss out on these boysssssss!!!!

I love these words so much!!! Worthy indeed Amber. Thanks for sharing!!! 

 

3 Speech Therapy Activities - Down Syndrome

One of the therapies we do with Hazel is Speech Therapy. Sometimes children with Down syndrome experience challenges with their speech development. In order for us to help Hazel to be prepared to face these challenges, early intervention with speech therapy has been our biggest tool. 

Down syndrome aside, I think that it is important to talk to your kids as much as possible, especially during daytime routines. Repetition and being able to anticipate routines helps kids to understand what is about to happen and eventually comprehend the language being spoken. We talk to Hazel constantly. I feel like a sports announcer at home a lot of the time. Announcing every activity before we do it.

A couple of examples…

  • “Let’s go and eat Hazel. Are you hungry?” She signs, “eat” or says “mmmmmmmm” (or both)
  • “Would you like to read a book?” She signs and says, “book”
  • “Would you like to get up?” She says “up”

I really just try talking to my girl all the time and exposing her to the language so that she can start to understand and try to imitate. It's no different than what most of you do in your homes.

 

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1. Imitation

When we started this, I tried to get her to imitate as many sounds as possible. Examples would be, “ma ma”, “bah bah”, “na na”, “ta ta” and so on through the alphabet. She tried her best to repeat after me and I would clap and tell her she was a good girl no mater what sound came out of her mouth. As long as she tried I was happy.

We also worked on attaching a meaning to that sound. Some examples:

  • Bah - Bye Bye
  • Baa – Bubbles
  • Na Na – Nonna or Nana
  • All Dah – All done

We still work on imitation, but now I try to get her to repeat full words. She tries and I clap and make a huge deal. It really is quite the production. The more I repeat, the more she tries to say it back. I also try to sync it to signs whenever possible.

 

2. Reading

Read. Read. Read. All day, every day.

I feel like I read the same books over and over and OVER. Hazel has definitely decided which ones are her favourite and she will sit all day and listen. Now she is starting to make sounds that she remembers as we go. She sits and reads books to herself ALL DAY. Turning the pages and pointing to pictures and words. I ADORE watching her.

For example:

  • We do alphabet sounds with some books, and I try to get her to repeat.
  • While we are reading books we practice animal sounds.
  • I try and get her to point to different things on the page (Where’s the ball? Where’s the pool? Etc.)

 

3. Singing songs and signing along

This is by far Hazel’s absolute favourite thing to do. I sing just about any song I can think of and just make up signs to it. Anything will do as long as I am consistent. While I sing I pause for a moment to let her try and show me what's next. In the beginning it really helped her to focus and try to come up with the next action. She knows so many now and loves it. It is really adorable to watch too!!!

Some examples of songs are:

  • Itsy Bitsy Spider
  • Wheels on the Bus
  • Five Little Ducks
  • Row Row Row Your Boat
  • Twinkle Twinkle

She knows each song so well now she's trying to sing along. Also, she is able to communicate to me which song she wants me to sing to her. This really has been a great speech tool, in that she has learned to communicate and sign along. Try it with your kids, it's the cutest!!!

 

Small Disclaimer: I just want to remind everyone again that these activities were given to Hazel, for Hazel, by her Speech Therapist. If you would like to try any of these at home with your babes, please ask someone in your local community for support and advice on what will work best for your children.

Visting young minds...at the U

There are some photos. They aren't great but, at the very least, they prove we were there. We very much enjoyed our experience as guest speakers in this class at the University of Windsor. It was a great platform for us to further raise awareness and educate others about people with Down Syndrome. Now...I will tell you all what I told them, a disclaimer of sorts (I believe there were a few disclaimers before the chat started):

I am by no means an expert on Down Syndrome, I am only an expert on Hazel. We set forth to share information that could be helpful to those who are interested in learning more about DS. This information is solely based on our personal experiences with Hazel, and what we have learned so far.

lec

 

The students were very interested to hear about some of the challenges Hazel has had to face with her health. After elaborating on Duodenal Atresia and her VSD, SHOCKED is a more accurate description of some of the facial expressions I saw as I scanned the crowd.

We went on to discuss the milestones that she has mastered and the ones she is working on next. More importantly, we talked about their futures. The future doctors, occupational therapists, physiotherapists, nurses, teachers and where ever else the wind may blow for these students. We tried our best to give an accurate description of what we expect as parents in any of these fields when dealing with a baby that has special needs.

lec1

 

We tried to create an environment of empathy and compassion, hope and positivity. All qualities that are important to me as Hazel’s mom. These are all qualities that Hazel’s therapists have. We went through some specifics about Hazel’s therapy.

We tried to foster thinking “outside-the-box” and being “open-minded”, when assessing a child that is a little different. Not all children with DS are the same and accomplish the same things at the same time. Just as with any child.

We cautioned the consumption of negative information about DS that can be found on the Internet. I tried to give some positive, helpful resources to help them to educate themselves and others.

I explained OUR role in the DS world – to ADVOCATE and EDUCATE and ultimately, aid in societal ACCEPTANCE!!!

 

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I have to share 1 part of the presentation here with you all. You are all such faithful, loyal, accepting supporters of Hazel.  You will SO get this about her…

(this is actually on the PowerPoint presentation)

So…Is our girl WEAK?

After facing:

  • Down Syndrome
  • Surgery at 28 hours old
  • Failure to thrive
  • Congestive heart failure
  • Open heart surgery at 5 months old

Low muscle tone maybe…but WEAK is not in her genes!!!

 

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lec

 

Thank you so much Professor Martindale for providing and allowing the opportunity to celebrate our daughter and educate those that may just be part of her successes in the future.

 

Grateful for this experience,

Enjoy your Monday